Living Between Appointments

March 7, 2026.Reading time 2 minutes.

When Healthcare Exists in Gaps Illness isn’t just lived in appointments. It’s lived in the spaces between them. The six weeks.The three months.The “we’ll review in a year.” It’s lived in waiting rooms, and then in the long stretch after you leave them. The Appointment Isn’t the Whole Story Appointments can feel structured. There is […]

Day 4: Navigating the System With a Hidden Disability

September 4, 2025.Reading time 2 minutes.

When your disability is hidden, you often have to work twice as hard to be believed — especially when navigating systems like benefits, housing, health care, or employment. You may be told you ‘don’t look sick,’ ‘seem fine,’ or are ‘too articulate’ — as though being ill means losing your ability to speak or try. […]

“But You Don’t Look Sick” – Living with a Hidden Disability

July 24, 2025.Reading time 3 minutes.

Some disabilities you can see. Others you can’t. But just because it’s invisible doesn’t mean it’s not there. And if you live with a hidden disability — physical, mental, sensory, neurological, or autoimmune — then you already know how exhausting it can be. Not just living with the symptoms, but *proving* them to people who […]