Guidance and Signposting for Life's Challenges
Fatigue isn’t just tiredness. It’s bone-deep exhaustion that sleep doesn’t fix. For people with conditions like ME/CFS, fibromyalgia, Long COVID, lupus, and even some mental health disorders, fatigue can be a full-body shutdown — often triggered by doing too much, too soon. This is where pacing comes in. It’s a self-management strategy that helps you […]
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You can’t always see a disability. But that doesn’t mean it isn’t there. Hidden disabilities — also called invisible or non-visible disabilities — are conditions that affect a person’s day-to-day life but aren’t obvious to others. These include things like chronic fatigue, autism, bipolar disorder, PTSD, sensory processing issues, and many long-term physical and mental […]
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Some disabilities you can see. Others you can’t. But just because it’s invisible doesn’t mean it’s not there. And if you live with a hidden disability — physical, mental, sensory, neurological, or autoimmune — then you already know how exhausting it can be. Not just living with the symptoms, but *proving* them to people who […]
Read MoreMany people have asked me what to do, who to contact and how it’s expected for you to be when your person dies, so I thought I’d share what I’ve learned during the last 6 months. What to do? Be hysterical. Be calm. Be whatever you need to be. There are no rules when your […]
Read MoreHoliday 2 of 4 cancelled. Part of me is pleased because COVID is still amongst us. When I add to the fact I’m nowhere near ready to leave the house and mingle with people, it makes for a good outcome. The other half of me is conflicted; I should leave the house, I should be […]
Read MoreHow do people who have suffered trauma cope with lockdown, with every day a Groundhog Day of pain? I can only speak for myself, but I’ve been on my own lockdown for the last 142 days. Yes, I’m counting. Each day presents new or repetitive challenges but the basis is the same. Dealing with the […]
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